Recently, I had the opportunity to discuss Rare Diseases and the challenges faced by those with rare diseases on CBS 9 – KCAL in Los Angeles. Rare diseases, though individually uncommon, collectively affect a staggering 300 million people worldwide. Understanding this complex issue and finding the right support can be a daunting journey. Here, I’ve…
Many individuals with rare diseases can feel isolated and overwhelmed. To shed light on this issue, Dr. Efrat Lamandre, the NP with a Ph.D., shared her insights on ABC 7 KABC Los Angeles, CA. During her appearance, Dr. Lamandre emphasized the complexity and uniqueness of rare diseases. She suggests that the rarity is sometimes due…
Dealing with sensory processing or stress-related issues can feel like you’re constantly trying to navigate a world that just isn’t set up for you. Having trouble focusing because of noise or feeling swamped by the sounds around you can be really tough. It’s normal for these things to make your days harder and mess with…
